#nord
Top Federal Health Officials to Headline NORD’s 2026 Rare Diseases and Orphan Products Breakthrough Summit in Washington, D.C.
WASHINGTON, D.C. and NORWELL, Mass. — Three of the nation’s most influential federal health leaders are set to take center...
NORD Awards Over $145,000 in Seed Grants to Advance Research into Four Underserved Rare Diseases
QUINCY, Mass. — The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving the estimated 30 million Americans...
NORD and Rosenau Family Research Foundation Launch Free Online Series to Inspire the Next Generation of Rare Disease Researchers
NORWELL, Mass. — In an effort to address a critical workforce pipeline in medical science, the National Organization for Rare...
NORD Announces Over $145,000 in Seed Grants to Advance Research for Four Underserved Rare Diseases
QUINCY, Mass. — The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans...
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
NORD and Rosenau Family Research Foundation Launch Free Online Series to Inspire Next Generation of Rare Disease Scientists
NORWELL, Mass. — In an effort to address a critical workforce pipeline challenge in medical science, the National Organization for...
NORD Announces 2026 Rare Impact Award Honorees for Advancing Treatments, Research, and Policy in Rare Disease Care
The National Organization for Rare Disorders (NORD®) has announced its distinguished slate of honorees for the annual NORD Rare Impact...
NORD Expands National Rare Disease Centers of Excellence Network With New Additions in California, New York, and North Carolina
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) announced the addition of three new institutions to its prestigious...
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
NORD Calls for Substantive Changes to Medicaid Work Requirement Rule – National Organization for Rare
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) formally urged the Centers for Medicare & Medicaid Services (CMS)...