#rare syndromes
TSC and Me Campaign Launches to Build a Connected Community and Combat Rare Disease Isolation
A new social media initiative has been launched to unite individuals and families affected by Tuberous Sclerosis Complex, offering a...
Beyond the Blueprint: Why the Genetics of Tuberous Sclerosis Complex Are More Complex Than Just TSC1 and TSC2
You might have already heard of the TSC1 and TSC2 genes, which are fundamentally linked to Tuberous Sclerosis Complex, commonly...
Navigating Disability Living Allowance: A Comprehensive Guide and Update for the Tuberous Sclerosis Association Community
The Tuberous Sclerosis Association (TSA) Support Line has recently experienced a notable surge in enquiries regarding Disability Living Allowance (DLA)....
Navigating Disability Living Allowance Support: A Comprehensive Overview for Families
The Tuberous Sclerosis Association (TSA) Support Line has recently experienced a notable surge in enquiries regarding Disability Living Allowance (Dla),...
NHS England Unveils 10-Year Health Plan: What It Means for the Tuberous Sclerosis Complex (TSC) Community
NHS England has recently unveiled its ambitious 10-Year Health Plan, a detailed and comprehensive strategy outlining how the healthcare system...
Navigating Summer Travel: Essential Guidance Released for the Tuberous Sclerosis Complex Community
As the summer months approach and families across the country begin finalizing their holiday plans, advocacy groups are highlighting the...
Updating Our Research Strategy: Stage One Complete in Our Mission to Better Serve the Tuberous Sclerosis Community
The organization dedicated to supporting individuals and families affected by Tuberous Sclerosis Complex (TSC) has announced a significant milestone in...
Navigating TAND: Understanding, Predicting, and Managing Challenging Behaviours Associated with Tuberous Sclerosis Complex
Families and caregivers navigating Tuberous Sclerosis Complex (TSC) frequently encounter complex behavioral challenges that can profoundly impact daily life. From...
Navigating Education Costs: A Comprehensive Overview of Available Financial Support for Families and Students
The financial burdens associated with education can accumulate rapidly, stretching household budgets to their limits. From daily school meals and...
TSC and Me Campaign Launches to Build a Connected Global Community and Raise Awareness for Tuberous Sclerosis Complex
A new initiative designed to unite individuals, families, and caregivers affected by Tuberous Sclerosis Complex (TSC) has officially been announced,...