#rare
NORD Applauds FDA Initiative to Develop a New Regulatory Framework for Rare Disease Drug Development
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) has issued a strong statement of support for...
NORD Applauds FDA’s Landmark Initiative to Create a Tailored Regulatory Framework for Rare Disease Therapies
NORWELL, Mass. — The National Organization for Rare Disorders (NORD) has issued a resounding endorsement of the U.S....
TSC and Me Campaign Launches to Build a Connected Community and Combat Rare Disease Isolation
The Tuberous Sclerosis Complex community is stepping into the digital spotlight with the launch of a new initiative...
NORD Applauds FDA Initiative to Establish New Regulatory Framework for Rare Disease Drug Development
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) has issued a strong statement of support for the U.S....
CNBC’s Becky Quick to Moderate High-Level CEO Panel on Rare Disease Innovation at the 2026 NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Diseases (NORD®) has announced a prominent addition to its...
TSC and Me Campaign Launches to Build a Connected Community and Raise Awareness for Rare Disease Day 2026
The ongoing challenge of living with a rare medical condition often extends far beyond the physical symptoms, frequently bringing feelings...
BioMarin, Jazz Pharmaceuticals, and Otsuka CEOs to Join NORD CEO for High-Level Dialogue on Rare Disease Innovation
WASHINGTON, D.C. and NORWELL, Mass. — In an era defined by unprecedented scientific breakthroughs, the ultimate measure of progress in...
CNBC’s Becky Quick to Moderate High-Level CEO Panel at NORD’s 2026 Rare Diseases & Orphan Products Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) has announced that Becky Quick, co-anchor of...
CNBC’s Becky Quick to Moderate High-Level Rare Disease CEO Panel at NORD’s 2026 Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Diseases (NORD®) has announced that Becky Quick, co-anchor of...
Becky Quick to Moderate High-Level Rare Disease CEO Panel at the 2026 NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) has announced a prominent addition to its...