#disease
Former U.S. Senator Nancy Kassebaum Baker Remembered for Transformative Role in Rare Disease Legislation and the Passage of the Orphan Drug Act
21 September 2026
The National Organization for Rare Disorders (NORD) has expressed its profound sorrow following the passing of former U.S. Senator Nancy...
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
20 September 2026
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
NORD and Rosenau Family Research Foundation Launch Free Online Program to Cultivate Next Generation of Rare Disease Scientists
19 September 2026
NORWELL, Mass. — In a significant step toward addressing the persistent talent and knowledge gap in biomedical exploration, the National...
Vermont Passes Historic Legislation Establishing Rare Disease Advisory Council After Years of Grassroots Advocacy
13 September 2026
Vermont has officially made history for its medical and patient communities. On May 13, 2026, the Vermont Legislature successfully passed...