#rare
Becky Quick to Moderate High-Stakes Rare Disease CEO Leadership Dialogue at the 2026 NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Diseases (NORD®) has announced that CNBC “Squawk Box” co-anchor...
Industry Leaders to Tackle the Future of Rare Disease Innovation at the 2026 NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Diseases (NORD®) has announced a high-profile leadership dialogue for...
National Organization for Rare Disorders Honors Biopharma Pioneers, Medical Scientists, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has announced its distinguished slate of honorees for the annual NORD Rare Impact...
Top Federal Health Officials to Headline NORD’s 2026 Rare Diseases and Orphan Products Breakthrough Summit in Washington, D.C.
WASHINGTON, D.C. and NORWELL, Mass. — Three of the nation’s most influential federal health leaders are set to take center...
NORD Awards Over $145,000 in Seed Grants to Advance Research into Four Underserved Rare Diseases
QUINCY, Mass. — The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving the estimated 30 million Americans...
NORD and Rosenau Family Research Foundation Launch Free Online Series to Inspire the Next Generation of Rare Disease Researchers
NORWELL, Mass. — In an effort to address a critical workforce pipeline in medical science, the National Organization for Rare...
Advocates Take to Capitol Hill to Highlight the Severe Challenges Facing 1 in 4 Cancer Patients Diagnosed with a Rare Cancer
WASHINGTON, D.C. and NORWELL, Mass. — Marking Rare Cancer Day on September 23, 2026, a coalition of patients, caregivers, medical...
National Organization for Rare Disorders Honors Industry Innovators, Medical Trailblazers, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has officially announced its distinguished lineup of honorees for the annual NORD Rare...
NORD Announces Over $145,000 in Seed Grants to Advance Research for Four Underserved Rare Diseases
QUINCY, Mass. — The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans...
Vermont Establishes Rare Disease Advisory Council After Historic Legislative Victory
Vermont has officially made history for its medical and patient advocacy communities. On May 13, 2026, the Vermont Legislature successfully...