Rare Diseases & Conditions
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
20 September 2026
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
NORD Calls for Substantive Changes to Medicaid Work Requirement Rule – National Organization for Rare
20 September 2026
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) formally urged the Centers for Medicare & Medicaid Services (CMS)...
HRSA and APHL Announce National Newborn Screening Workgroup to Restore Federal RUSP Review Pathway
20 September 2026
Posted August 13, 2026 by NORD WASHINGTON — In a major development for the nation’s public health and rare disease...
NORD and Rosenau Family Research Foundation Launch Free Online Program to Cultivate Next Generation of Rare Disease Scientists
19 September 2026
NORWELL, Mass. — In a significant step toward addressing the persistent talent and knowledge gap in biomedical exploration, the National...
Vermont Passes Historic Legislation Establishing Rare Disease Advisory Council After Years of Grassroots Advocacy
13 September 2026
Vermont has officially made history for its medical and patient communities. On May 13, 2026, the Vermont Legislature successfully passed...