#national
TSC and Me: Building a Connected Community Through a New National Campaign
A new nationwide initiative aims to transform the support landscape for individuals and families affected by Tuberous Sclerosis Complex, a...
National Organization for Rare Disorders Honors Biopharma Pioneers, Medical Scientists, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has announced its distinguished slate of honorees for the annual NORD Rare Impact...
Crisis Text Line Launches "Connection is Prevention" Campaign for National Suicide Prevention Month
As September marks National Suicide Prevention Month, organizations across the United States are ramping up efforts to address mental health...
National Council on Independent Living Condemns Federal Order Rescinding Key Section 504 Community Integration Rules
Dear Independent Living Community, Yesterday afternoon, a federal judge in the ongoing legal battle of Texas v. Kennedy issued a...
From Grassroots Spark to National Movement: How Helena Berger and REV UP Are Transforming Disability Voting Rights
As the national movement known as REV UP celebrates a decade of landmark impact, advocates and community leaders are reflecting...
New National Newborn Screening Workgroup Established to Restore RUSP Review Pathway Following Federal Committee Dissolution
Posted August 13, 2026 by NORD WASHINGTON — In a significant development for public health and the rare disease community,...
National Organization for Rare Disorders Honors Industry Innovators, Medical Trailblazers, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has officially announced its distinguished lineup of honorees for the annual NORD Rare...
National Organization for Rare Disorders Mourns the Passing of Former U.S. Senator Nancy Kassebaum Baker, Champion of the Orphan Drug Act
The National Organization for Rare Disorders (NORD) has expressed its profound sorrow following the passing of former U.S. Senator Nancy...
Crisis Text Line Centers National Suicide Prevention Month Around the Power of Human Connection
As communities across the United States observe National Suicide Prevention Month this September, leading mental health organizations are focusing their...
From Grassroots Roots to National Movement: Helena Berger and a Decade of Empowering the Disability Vote Through REV UP
As the REV UP movement marks a decade of national impact, disability advocates across the United States are reflecting on...