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BioMarin, Jazz Pharmaceuticals, and Otsuka CEOs to Join NORD CEO for High-Level Dialogue on Transforming Scientific Innovation Into Patient Progress
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) has announced that CNBC “Squawk...
Turning Scientific Breakthroughs Into Patient Progress: Rare Disease Leaders to Headline NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — As scientific and technological advancements open unprecedented frontiers in medicine, turning laboratory...
National Organization for Rare Disorders Honors Biopharma Pioneers, Medical Scientists, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has announced its distinguished slate of honorees for the annual NORD...
National Organization for Rare Disorders Honors Industry Innovators, Medical Trailblazers, and Patient Advocates with 2026 Rare Impact Awards
The National Organization for Rare Disorders (NORD®) has officially announced its distinguished lineup of honorees for the annual NORD Rare...
Unseen and Uncharted: How One Patient’s Routine Surgery Uncovered a Rare Stage 4 Cancer Diagnosis
In recognition of Rare Cancer Day, the National Organization for Rare Disorders (NORD) has shared the powerful, firsthand account of...
Finding Strength in the Shadows: One Patient’s Journey with Invisible Rare Cancer and Advocacy
In recognition of Rare Cancer Day, the National Organization for Rare Disorders (NORD) has shared the powerful, deeply personal story...