#rare
Vermont Makes History as Governor Phil Scott Signs Legislation Establishing Rare Disease Advisory Council
MONTPELIER, Vt. — Vermont has officially made legislative history for its medical and patient advocacy communities. On May 13, 2026,...
Former U.S. Senator Nancy Kassebaum Baker Remembered for Transformative Role in Rare Disease Legislation and the Passage of the Orphan Drug Act
The National Organization for Rare Disorders (NORD) has expressed its profound sorrow following the passing of former U.S. Senator Nancy...
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
NORD Calls for Substantive Changes to Medicaid Work Requirement Rule – National Organization for Rare
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) formally urged the Centers for Medicare & Medicaid Services (CMS)...
NORD and Rosenau Family Research Foundation Launch Free Online Program to Cultivate Next Generation of Rare Disease Scientists
NORWELL, Mass. — In a significant step toward addressing the persistent talent and knowledge gap in biomedical exploration, the National...
Vermont Passes Historic Legislation Establishing Rare Disease Advisory Council After Years of Grassroots Advocacy
Vermont has officially made history for its medical and patient communities. On May 13, 2026, the Vermont Legislature successfully passed...