#disease
Industry Leaders to Tackle the Future of Rare Disease Innovation at the 2026 NORD Breakthrough Summit
WASHINGTON, D.C. and NORWELL, Mass. — The National Organization for Rare Diseases (NORD®) has announced a high-profile leadership dialogue for...
NORD and Rosenau Family Research Foundation Launch Free Online Series to Inspire the Next Generation of Rare Disease Researchers
NORWELL, Mass. — In an effort to address a critical workforce pipeline in medical science, the National Organization for Rare...
Vermont Establishes Rare Disease Advisory Council After Historic Legislative Victory
Vermont has officially made history for its medical and patient advocacy communities. On May 13, 2026, the Vermont Legislature successfully...
NORD Welcomes Key FDA Leadership Appointments to Support the Rare Disease Community
WASHINGTON — On September 8, the U.S. Department of Health and Human Services announced the selection of four new senior...
Top Federal Health Officials to Headline Nation’s Largest Rare Disease Gathering in Washington, D.C.
WASHINGTON, D.C. and NORWELL, Mass. — Three of the nation’s most prominent federal health leaders are set to address more...
TSC and Me Campaign Launches to Build a Connected Community and Combat Rare Disease Isolation
A new social media initiative has been launched to unite individuals and families affected by Tuberous Sclerosis Complex, offering a...
NORD and Rosenau Family Research Foundation Launch Free Online Series to Inspire Next Generation of Rare Disease Scientists
NORWELL, Mass. — In an effort to address a critical workforce pipeline challenge in medical science, the National Organization for...
NORD Announces 2026 Rare Impact Award Honorees for Advancing Treatments, Research, and Policy in Rare Disease Care
The National Organization for Rare Disorders (NORD®) has announced its distinguished slate of honorees for the annual NORD Rare Impact...
NORD Expands National Rare Disease Centers of Excellence Network With New Additions in California, New York, and North Carolina
NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) announced the addition of three new institutions to its prestigious...
Vermont Makes History as Governor Phil Scott Signs Legislation Establishing Rare Disease Advisory Council
MONTPELIER, Vt. — Vermont has officially made legislative history for its medical and patient advocacy communities. On May 13, 2026,...